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  • Rare Diseases SA

Family struggles to cover R 3.6 medical bill for rare disease

Updated: Jul 11, 2022

Patients are being left in limbo by a 'grey area' in the law






For two years, Knysna resident Irene Sabbat has known which medication could reduce her excruciating bone pain - but has been unable to get her medical aid to pay the R3.6m-a-year charge for it.


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