Rare Diseases SA
Family struggles to cover R 3.6 medical bill for rare disease
Updated: Jul 11, 2022
Patients are being left in limbo by a 'grey area' in the law

For two years, Knysna resident Irene Sabbat has known which medication could reduce her excruciating bone pain - but has been unable to get her medical aid to pay the R3.6m-a-year charge for it.
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