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  • Writer's pictureRare Diseases SA

Jacques and Michaney de Wet will continue to fight for their son

Jacques and Michaney de Wet from Brackenhurst are battling to get their medical aid to pay for their son Zachary’s treatment despite this condition being a prescribed minimum benefit.

The family feels that given the severity of the condition alongside their medical aid benefits, denying Zach his right to health is unethical, and a fundamental human rights violation.

Zach, as they call him, has been diagnosed with a rare disease called Mucopolysaccharidosis Type 2 (MPS II) which is also known as the Hunters Syndrome in March 2021.

Since diagnosis, the family has been struggling to get their medical aid on board to approve the treatment Zach needs. The Alberton Record had the opportunity to meet Zach and his family to find out how he is doing and how the community can help.

Read more at Southern Courier

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